Baby Reesa was born on July 30, 2011. For the first few months of her life, Baby Reesa appeared to be a healthy and normal child. She was developing as any healthy and happy baby would, but shortly after her first six months of life, Baby Reesa’s health took a turn for the worse. Her parents took her to the pediatrician due to a typical stomach illness, but they had also noticed that Baby Reesa was falling behind in some of her baby milestones. Reesa was not grasping and rolling over as most babies her age do. She also clenched her fists more than would be expected. The doctors ran multiple tests, and after over a month, Reesa’s parents’ worst fears were confirmed. Baby Reesa was diagnosed with Krabbe Leukodystrophy, a rare genetic disorder with no cure. Only 20 of the 4,000,000 children born each year are struck with the disease. The life expectancy of a baby with Krabbe Leukodystrophy is typically less than two years. The father of Baby Reesa is a good friend of St. Louis Cardinals player Skip Schumaker. Now, Skip Schumaker and the Cardinals are having a fundraiser in honor of Baby Reesa. The event will be held at the SunRise United Methodist Church in O’Fallon, MO. The goal is not only to help Reesa’s family with the medical bills, but to also bring awareness to the ever-so-rare disease of Krabbe Leukodystrophy.
Recently, as reported in an updated status of Reesa’s health, things have taken a turn for the worse. Her smiles are less often and her laughs have turned to slight growls. She no longer responds to the movement of people in the same way that she once did. She can’t go much longer than five minutes without having a suction machine clean out her mouth to remove the saliva buildup. Fortunately, some adjustments in Reesa’s medication have made life a bit more comfortable for her.
Skip Schumaker is a Major League Baseball player and has played his entire MLB career with the St. Louis Cardinals. For the purposes of this article, his statistics are not important. What is important is that we make note of his efforts to not only bring comfort to Baby Reesa, but to also expose this awful disease in order to hopefully prevent future sufferers.
Here is an MLB.com video of Skip Schumaker’s efforts:
More information on Baby Reesa and Krabbe Disease can be found at http://www.babyreesa.com/.